Living With My Ostomy

By Brian Greenberg Twitter icon @BrianIIF

Today I noticed something very good.  Lately when I have been going to the bathroom, I haven’t been thinking about my ostomy in a negative way.  In fact I haven’t been thinking about it at all.  This might sound like the smallest thing in the world, but for me it’s something new.

At times when I have to use the bathroom, I’d say to myself “Ugh, I have to empty my bag” or “Not again, already?”  Sometimes I didn’t want to go to the bathroom, and at times I didn’t even want to look at my ostomy.  It’s a constant reminder of my history and what I’m still going through.

In no way is it a negative, but it’s still not the norm.  Most people want to be as normal as possible.

This is just the way I have to use the bathroom.

I just go, don’t even think about it and get back to whatever I’m doing.  I guess I’ve come to peace with what it is – a necessary part of my life, and in no way should it upset me.

I was thinking about why I had this change in attitude.  Maybe it’s because I’m so busy lately and don’t really have time to think about it?  Maybe it’s because I’ve been feeling so well that I haven’t been thinking about Crohn’s?

Maybe it’s the new normal?

What I think it might be, is that I’m finally not looking at it as something different. It is the norm for me and I am embracing that part of my life.  I’m not sure if I can put a real finger on what this change in attitude is.

For whatever reason, I’ve come to peace with it and it hasn’t bothered me. Which is a good thing.

Brian had ileostomy surgery in 2011 due to Crohn’s disease. As the founder of Intense Intestines Foundation, he’s an advocate for those with Inflammatory Bowel Disease & Ostomies. He enjoys swimming, cycling and the great outdoors.

Leave your comment
8/3/2017 5:20 PM
That is wonderful Brian. Everyone does it in their own time.